I'm currently interviewing hospice patients to learn from their experiences, unobstructed by professional apparatus. What exactly is their perception of end-of-life? My interviews only begin with one question asking the patient to try to describe, in their own words, their end-of-life experiences. I then use qualitatives software to explore for patterns that are often missed from more formal interview and questionnaire methods. The dying are powerful and important teachers if we learn HOW to listen to what they are trying to say. Dying experiences are mostly unformulated and difficult to express, often relying upon associations from patients' past. And, patients appear to take great pleasure in having someone listen deeply (compassionately) to what they have to say (technique is simlar to that used in dignity therapy).
I know realize I can do more of this using Skype and having patients tell their stories over their telephone (at no cost to them). I like to invite anyone know knows of any hospice patients who would like to be a teacher tell their story to place contact me. I would ideally like to post their stories on PCN keeping the speaker's identity confidential.
Another part of this would be to have people working in the field be interviewed so they could share an significant experience they have had with patients (again confidentiality) so other can learn from these events. I have found interviewing patients this way to not only be informative but personally very rewarding.
Anyone want to jump into this with me?
Take care and hope to hear from you soon.