Media Watch 529

Attached is the current edition of Media Watch (#529).


Of special interest in the current issue of the weekly report:


What are families most grateful for after receiving palliative care? Content analysis of written documents received: A chance to improve the quality of care


BMC PALLIATIVE CARE | Online – 6 September 2017 – Knowing family carers’ perception and understanding their experiences is a chance to enhance how to be helpful to patients and family members, and allows palliative care professionals to identify positive aspects of their care in order to improve the assistance provided to patients and family carers. Despite the sadness of their loss, comments from family carers provide valuable input about their points of view of the scope of care. Family carers highlight the importance of key aspects that require a close relationship between health professionals and themselves, suggesting that this component or aspect could be used as a quality indicators of care. Three different content categories emerged from the authors’ analysis: 1) Recognition of the care received and the value of particular aspects of care within recognised difficult situations included aspects such as kindness, listening, attention to the family, empathy, closeness, affection and the therapeutic relationships established; 2) Family recognition of the achievements of the PC team indicated as relief from suffering for the patient and family, opportunity of dying at home, help in facing difficult situations, improvement in quality of life and wellbeing, and feeling of serenity during bereavement; and, 3) Messages of support related to the need of resources provided. The relational component emerges as an underlying key aspect of family carers’ experience with PC home service. 


The spiritual nature of uncertainty among hospice patients


JOURNAL OF HOSPICE & PALLIATIVE NURSING, 2017;19(5):480-486. People with protracted and life-limiting illness engage in end-of-life (EoL) transitions as they prepare for death. The EoL is a time of mystery that elicits uncertainties in the form of questions, worries, and doubts. If not managed properly, uncertainties can contribute to emotional distress and feelings of lost control. Currently, uncertainty occurring at the EoL is under researched. Study participants were asked to describe the uncertainties that they had while they were dying. Interestingly, most of the stories about uncertainty were spiritual in nature. An overall theme of “uncertainty as a bridge” emerged from the data as the way uncertainties affected their dying. Two sub-themes of “uncertainties about dying” and “uncertainties about important relationships” also emerge as the areas of greatest concern for participants. These findings support uncertainty as an important phenomenon for people preparing for death and one that providers of EoL care should understand.