Media Watch 563

Attached is the current issue of Media Watch (#563).

 
 
 

Of particular interest in this week's issue:

“It’s a nice place, a nice place to be.” The story of a practice development programme to further develop person-centred cultures in palliative and end-of-life care

INTERNATIONAL PRACTICE DEVELOPMENT JOURNAL | Online – 16 May 2018 – The authors provide a detailed account of the processes and outcomes of a programme specifically designed to develop a person-centred culture in a palliative and end-of-life care service. The programme used a transformational practice development approach for the development of a person-centred culture and a framework for human flourishing as a means of analysing processes and outcomes. The programme demonstrated the importance of person-centred cultures for sustainable person-centred care; the creation of such cultures is imperative if sustainable person-centred care is to be made a reality. Human flourishing is a desirable moral goal in organisations, recognising the need for the personhood of all persons to be respected. If we are to move beyond the rhetoric of person centredness and truly embrace its values, then the continuous articulation of “patient-centredness disguised as person-centredness” needs to end. 

Palliative care in the global setting: American Society of Clinical Oncology resource-stratified practice guideline

JOURNAL OF GLOBAL ONCOLOGY | Online – 8 May 2018 – The purpose of this new resource-stratified guideline is to provide expert guidance to clinicians and policymakers on implementing palliative care (PC) of patients with cancer and their caregivers in resource-constrained settings and is intended to complement the Integration of Palliative Care Into Standard Oncology Care: American Society of Clinical Oncology (ASCO) Clinical Practice Guideline Update of 2016. The recommendations help define the models of care, staffing requirements, and roles and training needs of team members in a variety of resource settings for PC. Recommendations also outline the standards for provision of psychosocial support, spiritual care, and opioid analgesics, which can be particularly challenging and often overlooked in resource-constrained settings. The guideline is intended to complement but not replace local guidelines.

Measuring the impact of the home health nursing shortage on family caregivers of children receiving palliative care

 

JOURNAL OF HOSPICE & PALLIATIVE NURSING, 2018;20(3):260-265. The national nursing shortage [in the U.S.] translates into a gap in home nursing care available to children with complex, chronic medical conditions and their family caregivers receiving palliative care (PC) consultations. A total of 38 home health nursing surveys were completed by families receiving pediatric PC consultation services at a freestanding children's hospital in the Midwest. The gap in the average number of nursing hours allotted versus received was 40 h/wk per family, primarily during evening hours. Parents missed an average of 23 hours of employment per week to provide hands-on nursing care at home, ranking stress regarding personal employment due to nursing shortage at 6.2/10. Families invested an average of 10 h/mo searching for additional nursing coverage and often resorted to utilizing more than 6 different home nurse coverage personnel per month. Families reported multiple delays to hospital discharges (mean, 15 days per delay) due to inability to find home nursing coverage